Greetings from PatientC!

Hallo! I am PatientC. I write a lot about being a crip, a gimp, handicapped, disabled, messed up, plagued, etc… The truth is I have lupus/SLE and a number of smaller health issues, and I can be pretty vocal about it. Oh, and I can write about almost anything, but introductions are unusually difficult, so bear with me while I figure out what you may want to know.

I believe that a sense of humor, even a dark one, is the essential modern day survival skill. Following a close second is the ability to communicate emotions in an effective manner. Without these, we rot from the inside out until all that is left is a bitter, decayed shell.

My perv history begins before my crip history, kind of. I am part of a poly family, and we have all lived together for a decade this past spring. I am also bisexual and pervy, and for six years I was the face of a fetish performance art group called CrimsonMane. What we did ranged from writing FAQs and doing demos to elaborate theatrical performances. I have also worked as a pro-sub at two houses, and served as a receptionist at one house of domination.

My crip history is long and varied. Lupus ruled for about seven years or so before we pegged it down and we started treatment that actually made some difference. Other culprits along the way included mono, chronic fatigue syndrome, multiple sclerosis, hypochondria, Munchausen’s syndrome, and malingering. It was a long, tortuous path and at different points in it I doubted myself. I prevailed eventually, and I want to be part of a community the helps supports other folks on the same path.

What comes to my head to write about can vary far and wide: from video games to assisted living product reviews to social commentary to rants to advice. Really, whatever comes to mind long enough for me to get to a keyboard is fair game – but it is all colored by who I am, my experiences, and the way I live my life.

I am really glad to be here at SexGenderBody, and I hope to add something good to the amazing content here.

Jaded's picture

Thinking In Tongues

Lately I’ve been very busy translating things — French things to English, diluting some literary Gujarati with the help of my grandma and strangely, also my thoughts from English to my native tongue(s) as this summer break she helps me read in a few tongues that have been rusting inside me since the past few years.  For a long time, English has been my go-to language and my native tongues occupy a secondary position, of horrid pidgins that mix many tongues and dialects – which are hilarious at best and painful at worst — and a language I must use with family, with people who aren’t fluent enough in English, a language that is substituted for English and even then I barrel this tongue with English words — I don’t see this as a necessarily bad thing, just illustrating how no matter how hard I try, my native tongues come to me as an after-thought. Sometimes, my grandma will ask me to read પાની and instead I read “water” in my head, and to save face say the Gujarati word out loud — but she knows anyway that it doesn’t come to me ‘naturally’. Generally we smile at each other when this happens, she asks me to try again and I instruct myself to think in my mother tongue, and it works for a while. Then in about two minutes, she asks me to read a whole sentence and I am again judging it by English syntax and grammar forms. I don’t need to learn to speak read write in these tongues, those I did as a child either in school — where the State you belonged to dictated the tongues you’d learn  – or at home where we speak our mother tongue. It’s thinking in different tongues that I am working on and so far, miserably failing.

For years, my English and the ‘talent’ to say things well have been indistinguishable from my identity as an upper-caste Hindu lady, “who will one day go to the U.S. also and write big-thick books for people to read” to borrow my cook’s words as she describes who I am and what I will do — according to her — to her neighbours. She says fondly, “Look at her English, I want my daughter also to speak like her! How fast-fast she goes, sometimes talking liddat on the phone and marking something in study books also” as her neighbours smile politely at us. I’ve gone to this neighbourhood since at least the past decade or so, I used to play with many children who now don’t speak with me at all, and if they do only in English — They say, “How you do” and I used to say, “ठीक हूँ” — and they’d get embarrassed and I’d get angry that no matter what I did ‘those people’ don’t want to speak in their native languages — it’s taken me a lot of time to see how them addressing me in English was their way of leveling ground between us and me stomping all over it and patronising them and replying in Hindi was nothing but my privilege raising its head. English still remains for us a class and a cultural marker, a certain kind of English that you speak marks you from which part of the city you come from — if you code-switch and say, “I don’t know, ask ajoba no” for instance, pegs you from North Mumbai — and the more ‘unadulterated’¹ your English is, the better education and class background you are assumed to have. It didn’t help that I am ‘convent educated’ — a phrase we treat as a synonym for ‘Good English And Decorum’ — and was taught by British and Indian nuns who’d both tell us that “Your native languages can stay at home. Here we speak English — like people“. So we’d speak at lunch in our native tongues, but even that stopped as we grew older and English was just more convenient; plus by then, speaking in English meant Serious Business².

Christina Engela's picture

Blasphemous Rumors

I know I have been quiet lately, but it's just because I've taken the weekend off. Honest. Rumors of my being raptured are greatly exaggerated - in fact, I am still here, and so is my underwear drawer, which still needs tidying. Damn.

I am typing this article on the morning of Sunday 22 2011. I am still here, and so is the house I live in - and the cars parked outside tell me the businesses across the road are doing their usual booming breakfasting business. The city around me is not on fire and there haven't been any tsunamis during the night. My mother woke up this morning, as usual, and shuffled past my door - so I knew she was still here. All is right with the world then.

As I expected, the May 21 "rapture" was a bust. Partly I was a little disappointed, because I had accepted invitations to several events on Facebook, such as the "Post-Rapture Party" and the "Post-Rapture Looting", which I admit, I had been looking forward to a little. In fact, I already had been eying those fancy cars some of the folks from Harvest and Word of Faith drive around in - unless they took to selling or giving them away in anticipation of being "raptured" of course. Hehe. I can only imagine the arguments to follow.

Be that as it may, it is now May 22, and nope, no Rapture. Some of you, a very few, may wonder what this "Rapture" is supposed to be. My mother, who has been a Christian her whole life, is one of them. Simply put, the Rapture is supposed to be the start of the end times, when all the "good Christians" vanish from the Earth, cars and planes crash with nobody to fly them, to be taken to God, Jesus, Heaven etc. People just disappear, leaving behind perhaps no more that a set of empty clothes and maybe a half-eaten hot-dog - which has prompted some folks to attempt some interesting pranks!

The Rapture supposedly leads up to the rise of the "anti-Christ" and ultimately the end of the world - because, as everyone knows, civilization simply could not exist without the Conservatives.
Jaded's picture

Things People Need To Stop Believing

As a dusty third worldling, one of the things I learnt first was to see if there were other dusty people in the room whenever I go to any transnational feminist conferences. Something else I also learnt is to not expect ‘solidarity’ from anyone unless expressly proven otherwise — and these views are a result of the way people view me and my body in notIndia, what people assume of me in most internet spaces and fandoms. My friend and I compiled this list comprising of a few of the most repetitive and inane stereotypes that we’ve encountered of Third World Women. By no means is this list exhaustive, feel free to add your experiences in the comments — and tread carefully, the list is full of racial slurs and epithets.

1. We’re not disposable objects or your fetish or ‘flavour’ of the month. Not all Third World Women are ‘women’, but we don’t have the choice to identify the way we want, because exotification gets in the way of our special plans.

2. Not all Third World Women live in lands that are in a state of constant war. We exist in cities, between towns and villages — many in the West. There is no fixity of geo-political location, we don’t need to be in the Third World to be marginalised.

3. Not all of us live in tin shacks or mud houses, like every other group we too are scattered across classes and communities across the planet.

4. In popular culture and media, if Third World Women characters don’t wear shiny and bright colours, reality will not crack I assure you.

arvan's picture

"Fuck Heteronormativity"

I love this video / song, like there's no tomorrow.

Christina Engela's picture

Come To The Dark Side - We Have Cookies Too

Christians - you just can't seem to win with them. If you're gay, you're evil. If you're not religious, you're evil. If you're an atheist, you're a "willing pawn of the devil". If you believe in another god or gods, or even call their god by another name, you're evil. If you are tolerant of other faiths, or of homosexuals - then you're "misled", "backsliding" or yep, evil.

If you're gay and a Christian (horror of horrors), they want to cut up your membership card and deny that you are part of their club (or ever were), and when you abandon their faith or even go so far as to change religions and want nothing more to do with them, they still persecute you because you have somehow "proved them right" - and then they see you as an even bigger "threat" to their paranoiac little "worldview".

Many Christians automatically assume everyone else is a Christian too, or if they aren't, should be - which is why I often receive these annoying spam chain letters filled with snarky comments about Muslims or other faiths - or about us dirty rotten trannies and queers who just don't seem to get the message. God has got our number and will be coming round to punish us for our "sinful lifestyle choice" - oh yes, and presumably to pat them on the head for a job well done. And quite often, these people do not realize the harm they do to their own image and their own cause - take for example the following:

The world is always ending, the sky is always falling, and there are always "signs of the end times". I am seriously looking forward to the 22nd May 2011 - because I am going to taunt every fundamentalist half-wit who sent me a chain letter about the end of the world being nigh on the 21st with: "Hey guess what, the world didn't end yesterday - don't we feel stooopiiid?" LMAO. Just like the other twenty-odd dates I've heard of in the past few years. What happened? Was it postponed? Cancelled due to poor attendance? Why didn't I get the memo? LOL. Now, ahem - before someone runs off to report me for being a "Christophobe" (that one was specially for "Dr" Peter Hammond of the FF and CAN conglomerate whose wonderful book exposed our cunning plan to take over the world), let me move on to my point.
Alex Karydi's picture

Why you should fight for Civil Rights!

“All, too, will bear in mind this sacred principle, that though the will of the majority is in all cases to prevail, that will, to be rightful, must be reasonable; that the minority possess their equal rights, which equal laws must protect, and to violate would be oppression.”

Thomas Jefferson (American 3rd US President (1801-09).

Author of the Declaration of Independence. 1762-1826)

 

~The Lesbian Guru

If you have any questions, comments, or concerns please feel free to email me at TheLesbianGuru@Gmail.com with ExaminerQ as the title or you can follow me on my Blog http://TheLesbianGuru.com! Or  just Join The Lesbian Revolution of Health & Love on http://Twitter.com/TheLesbianGuru or http://Facebook.com/TheFemmeGuru.

Olga Wolstenholme's picture

Laundry As You Like It

 

My Mom likes to collect things. For fear that she’s about a breath away from becoming a hoarder, I’m always getting her to throw out stuff we never use only to ask for them a year later. “Mom where’s that old typewriter?” “You made me throw it away!” “Oh yeah…shit.”

She especially likes to keep relics from the past, one of them being this General Electic Magazine about laundry. This is the kind of spread that makes me think of the show Mad Men. I picture men in suits, scotch (or is it whisky) in hand, smoking cigarettes, checking out the ladies and coming up with ways to conquer the world.

Do you think advertizing has changed a lot in the last few decades or is it all the same shit in a different package? Anyway, I thought these images were interesting… You can take a look at the full-sized images by clicking on the thumbnails below.

Update: On a side note, when I dream of suburbia, I dream of magnificent laundry rooms. A laundry room that Martha Stewart would envy. I would have a separate hamper for everything: darks, whites, colors, and delicates. Soaps and fabric softeners of all kinds. Delinters, ironing boards, oh my. These are but a few of my favorite things.

With all that said and done a word from our sponsors:

Jaded's picture

Learning Relevance Through Erasure

One of the few things people connect with India besides Slumdog Millionaire and hub of cheap Third World labour are the epics Ramayan and Mahabharat — which are of course, anglicised to Ramayana and Mahabharata. Almost always, these epics are seen as the narrativisation of ‘the great oral tradition of storytelling’, basing this tradition in the past, which not only increases the net worth of such a text but also binds the epic with ‘history’; it’s seen as a ‘pre-colonial’ Indian¹utopia and as the ‘pure’ culture, while neatly obliterating the existence of more than a few hundred narrativisations of these epics — which are subjective to the caste and class of the community they come from — and they’re seen synonymously with Hinduism and our religions — meanwhile western epics like the Iliad and Odyssey are seen as Great Literature and not the representative of a population. Thanks to this pact with ‘history’, these texts are seen as — forcibly — situated texts that describe how Things Were Back Then and almost always read when mirrored with Christianity or the western gaze. So when the text turns out to have any contemporary beliefs or depict any ‘modern’ behaviour, it is hailed as a new ‘discovery’, when in reality these ‘discoveries’ have always existed in the texts. Insert quip about colonisation here.

Lately, there is a new surge of reading ‘religious’ texts through a queer perspective, which perplexes me to no end — for these particular texts, Mahabharat especially, have always been queer texts. I grew up with stories from the Mahabharat and have known tales of Krishna and Radha role-playing and switching genders, Arjun living as a woman for a year with a man’s mind, Draupadi as the daughter born of a man’s body — and these are a few instances I can remember without even looking at the texts my grandmum used to read. Agreeably, in most re-tellings of this epic, even these gender transgressions are somehow inserted into patriarchy — Krishna becomes a ‘womaniser’ who doesn’t mind ‘playing around’, Arjun is written and seen as a character who ‘just dresses as a woman’ while retaining his identity and physical form, Draupadi’s birth is naturalised — however what these studies do is anthropologically ‘carve out’ queer instances and characters, instead of just rescuing the regional-dialectical re-telling from the mainstream one. Not to mention, even these queer characters are seen through the Western lens and then we have debates and papers arguing just why Arjun isn’t a trans* character, without taking into account that being trans* across different cultures or that even ‘queer’ manifests in different forms here. Because of such ritual and continuous exotification, books like Devdutt Pattaniak’s ‘The Pregnant King‘ are a cause for wonder and amazement in the Western world — more like a mild case of, “I used to be Brown but now I Think!”.

Christina Engela's picture

SA - Not So Liberal After All


Not interested in politics? Not interested in how the government spends its time - and your money? Really? Think we live in a nice, quiet, safe country where all is right with the world? The government is benevolent and doing its best to deliver all the things it claims to? Think it lives up to our Constitution? Think it cares about all the people who live in South Africa? Think there is no reason to be concerned with anything to do with politics?

Who is still naive enough to think we aren't already living in a police state? Come on, don't be shy - put your hands up.

Think about it for a moment. No, really.

The South African Police "Service" have resumed the use of a military rank system - and their "General" has told them for all intents and purposes to shoot first and ask questions later - and to shoot to kill. People accused of crimes, innocent or not, spend years in prison awaiting trial. The recent spate of police brutality and excessive force and unjustifiable violence has resulted in comparisons between the current Police "Service" and the old Apartheid-era Police "Force" - and these comparisons have been made not just by the average citizen - but also by those formerly oppressed by the old Police Force. Looking at it closely, one can understand perfectly why.

Two weeks back, a local activist in Ficksburg was brutally assaulted and then shot dead by a group of policemen in riot gear - this despite the fact that the man was not even resisting them. The fact that this transpired openly in front of press cameras and journalists, speaks of a shameful devaluation of human life and threatens to redefine the term "transparency". Last week, an unarmed civilian was shot dead by a policeman in the street outside a police station while in her private vehicle, apparently after colliding with a parked police vehicle. It is as though the average police officer these days doesn't care a damn what they do and who sees it and knows about it - because the "boss" said it is "okay" and they are after all, "only doing their job". Also last week, it was reported that a policeman at a crime scene refused to call an ambulance for a wounded victim despite repeated pleas to do so because "she was going to die anyway". And yes, the victim did die - but who made this policeman an expert in the medical field? The fact that she did die doesn't prove him right - if anything, it makes him complicit. So first we had "shoot to kill" - now we have cops who think they are qualified to decide whether shooting victims will die or not. We now have police officers who seem to think they are the law and they are above it.
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